Cora’s 4 year old twins Charlie and Olivia both have Rett Syndrome. 

Jo’s Rett Syndrome story is a little different to what we’re typically used to hearing – her daughter Megan is currently 15 and wasn’t diagnosed until she was 12, just 3 years ago. 

Justine’s 2 year old son William has Rett Syndrome – yes boys can have Rett Syndrome too! 

Part 2 of my chat with Mel for the Remarkable podcast.
Again, we had such a great time chatting about everything they’ve experienced with Rett Syndrome. I didn’t know much about clinical trials for Rett Syndrome beforehand, so I’m so glad to have spent the time with Mel and soak in the knowledge she has.