Jo’s Rett Syndrome story is a little different to what we’re typically used to hearing – her daughter Megan is currently 15 and wasn’t diagnosed until she was 12, just 3 years ago. 

We had a great talk about how a later diagnosis of Rett Syndrome has effected them, and how Megan is doing today. 

Links to the topics we discussed:

Autism or Rett Syndrome?
https://www.rettsyndrome.org/about-rett-syndrome/faqs/

Atypical Rett
https://www.rettsyndrome.org/about-rett-syndrome/rett-syndrome-diagnosis/

Facebook group – **RETT SYNDROME AUSTRALIA**
https://www.facebook.com/groups/15688775612/

 

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

 

Thanks so much for listening, 

Tracey 

teamjovie.com

 

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