Helpful Links

Here is the entire list of links from each episode of Remarkable.

What is Rett Syndrome?

History of Rett
https://www.rettsyndrome.org/about-rett-syndrome/history-of-rett/

How Mutations in the MECP2 Gene Cause Rett Syndrome
https://www.youtube.com/watch?v=eTzfA5_CdXg

Newly Diagnosed?
http://www.graceforrett.com/newly-diagnosed/

The Boys of Rett
https://reverserett.org/the-boys-of-rett

Life Expectancy
https://www.rettsyndrome.org/about-rett-syndrome/faqs/

Roadmap to a Cure – Rett Syndrome Research Trust
https://reverserett.org/cure/
https://www.youtube.com/watch?v=AaF9AmXv9d4

Understanding the 2007 Reversal (MECP2/Rett Syndrome Reversal – Adrian Bird, Ph.D.)
https://www.youtube.com/watch?v=_3soCaY3CwM

DONATE – Where to fundraise?
Please consider these few places to help support the research and the families with Rett Syndrome

Rett Syndrome Research Trust – https://reverserett.org/donate/
Rett Syndrome Association of Australia Inc. – https://rettaustralia.org.au/donate/
Telethon Kids Institute Australia – https://rettsyndromeresearch.raisely.com/
Girl Power 2 Cure – https://www.girlpower2cure.org/donate/
Rettland Foundation – http://rettland.org/donate/
RettSyndrome.org – https://www.rettsyndrome.org/get-involved/donate/

Rett Clinics
https://www.rettaustralia.com/clinics
https://www.rettsyndrome.org/for-families/rett-syndrome-clinics

Naomi Carlise & Olivia

Natalie Weaver
https://www.instagram.com/nataliecweaver

Facebook group link – Rett Syndrome Family Support Forum
https://www.facebook.com/groups/250235058326930/

Katies Rett Clinic, California
http://katienuesfoundation.org

Rett Clinics
https://www.rettaustralia.com/clinics
https://www.rettsyndrome.org/for-families/rett-syndrome-clinics

Tobii – Eye Tracking Device
https://www.tobiidynavox.com/learn/user-conditions/rett-syndrome/

myGaze Eye Tracker
http://www.mygaze.com/products/mygaze-eye-tracker/

Pragmatic Organisation Dynamic Display (PODD) Communication Books
http://www.spectronics.com.au/product/pragmatic-organisation-dynamic-display-podd-communication-books-direct-access-templates

rettsyndrome.org New Diagnosis support
https://www.rettsyndrome.org/for-families/newly-diagnosed/

The Rett Bible is actually The Rett Syndrome Handbook by Kathy Hunter
https://www.amazon.com/Rett-Syndrome-Handbook-Kathy-Hunter/dp/0977064409