Kati’s daughter Kendall is 4 and is living with Rett Syndrome.
This is Part 2 of my talk with Caroline.
I know it took alot of courage to say what Caroline has said – but we know that there are other families out there going through the same challenges and the advice and encouragement from Caroline is so powerful.
Caroline and I have actually known each other for a few years but this was the time first we sat down to talk about how Rett Syndrome has effected her daughter Charlotte and how her divorce has changed their family dynamics.
Jodi’s 7 year old daughter Avery has Rett Syndrome, but that was not her first diagnosis.
After talking with many families, it was apparent that alot of us experience receiving an Autism diagnosis before we reach the correct diagnosis of Rett.