Part 2 of my chat with Mel for the Remarkable podcast.
Again, we had such a great time chatting about everything they’ve experienced with Rett Syndrome. I didn’t know much about clinical trials for Rett Syndrome beforehand, so I’m so glad to have spent the time with Mel and soak in the knowledge she has.
Please remember to check out her blog for more info about their lives with Rett, and check out some of the links below if you’re interested in the clinical trials available where you are.
Links to the topics we discussed:
Atypical Rett Syndrome info
Mel”s Blog – Trail To A Texas Trial –
Girl Power 2 Cure – Active and Anticipated 2019 Rett Syndrome Drug Trials
Blog posts about Clinical Trials
U.S. National Library of Medicine – ClinicalTrials.gov
Acadia Pharmaceuticals – Trofinetide – Rett Syndrome info
Neuren Pharmaceuticals – Trofinetide (also known as NNZ-2566) in Rett Syndrome
Rettland Foundation – family support
Medicinal Chemistry Hall of Fame – Dame Margaret Brimble
Dame Margaret Brimble
Bruce E. Maryanoff – Topiramate
GET IN TOUCH!
Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families.
Thanks so much for listening,