Naomi is the mum to the beautiful 2 year old Olivia, who was diagnosed with Rett Syndrome in May 2019. It was a great pleasure to talk with Naomi about how they are managing life with a new diagnosis of Rett Syndrome.
Naomi had an amazing amount of info to share with you all!
Links to the topics we discussed:
Facebook group link – Rett Syndrome Family Support Forum
Katies Rett Clinic, California
Tobii – Eye Tracking Device
myGaze Eye Tracker
Pragmatic Organisation Dynamic Display (PODD) Communication Books
rettsyndrome.org New Diagnosis support
The Rett Bible is actually The Rett Syndrome Handbook by Kathy Hunter
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Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families.
Thanks so much for listening,