Naomi is the mum to the beautiful 2 year old Olivia, who was diagnosed with Rett Syndrome in May 2019. It was a great pleasure to talk with Naomi about how they are managing life with a new diagnosis of Rett Syndrome. 

Naomi had an amazing amount of info to share with you all! 

Links to the topics we discussed:

Natalie Weaver
https://www.instagram.com/nataliecweaver

Facebook group link – Rett Syndrome Family Support Forum
https://www.facebook.com/groups/250235058326930/

Katies Rett Clinic, California
http://katienuesfoundation.org

Rett Clinics
https://www.rettaustralia.com/clinics
https://www.rettsyndrome.org/for-families/rett-syndrome-clinics

Tobii – Eye Tracking Device
https://www.tobiidynavox.com/learn/user-conditions/rett-syndrome/

myGaze Eye Tracker
http://www.mygaze.com/products/mygaze-eye-tracker/

Pragmatic Organisation Dynamic Display (PODD) Communication Books
http://www.spectronics.com.au/product/pragmatic-organisation-dynamic-display-podd-communication-books-direct-access-templates

rettsyndrome.org New Diagnosis support
https://www.rettsyndrome.org/for-families/newly-diagnosed/

The Rett Bible is actually The Rett Syndrome Handbook by Kathy Hunter
https://www.amazon.com/Rett-Syndrome-Handbook-Kathy-Hunter/dp/0977064409

 

GET IN TOUCH!

Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 

FACEBOOK https://www.facebook.com/remarkablepodcast

INSTAGRAM https://www.instagram.com/remarkablepodcast

 

Thanks so much for listening, 

Tracey 

teamjovie.com

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