Naomi is the mum to the beautiful 2 year old Olivia, who was diagnosed with Rett Syndrome in May 2019. It was a great pleasure to talk with Naomi about how they are managing life with a new diagnosis of Rett Syndrome. 

Naomi had an amazing amount of info to share with you all! 

Links to the topics we discussed:

Natalie Weaver

Facebook group link – Rett Syndrome Family Support Forum

Katies Rett Clinic, California

Rett Clinics

Tobii – Eye Tracking Device

myGaze Eye Tracker

Pragmatic Organisation Dynamic Display (PODD) Communication Books New Diagnosis support

The Rett Bible is actually The Rett Syndrome Handbook by Kathy Hunter



Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 




Thanks so much for listening, 


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