Kati’s daughter Kendall is 4 and is living with Rett Syndrome.
This was my first talk with another Rett Syndrome family for the Remarkable podcast and I knew that I was about to learn so much from the other families with the same diagnosis as we have.
It’s my joy to introduce you to their family today.
Links discussed in this episode:
Apraxia
http://www.graceforrett.com/rett-syndrome/r168x/apraxia-learning-disability/
Facts about pregnancy and chances of another Rett child
https://www.rettsyndrome.org/about-rett-syndrome/faqs/
Seizure Types
https://www.epilepsy.org.au/about-epilepsy/understanding-epilepsy/seizure-types-and-classification/
Diagnosing Epilepsy
https://www.epilepsy.org.au/about-epilepsy/managing-epilepsy/diagnosis/
Self care for special needs parents
https://www.vsk.org.au/self-care-for-special-needs-parents/
https://themighty.com/2017/12/self-care-parent-child-disabilities/
Clinicians make mistakes about intellectual impairments – as new Rett syndrome findings show
https://theconversation.com/clinicians-make-mistakes-about-intellectual-impairments-as-new-rett-syndrome-findings-show-95085
When a rare syndrome renders girls voiceless, tech helps them speak again
https://mashable.com/2016/09/04/eye-tracking-technology-rett-syndrome/
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Thanks so much for listening,
Tracey