Jodi’s 7 year old daughter Avery has Rett Syndrome, but that was not her first diagnosis.

After talking with many families, it was apparent that alot of us experience receiving an Autism diagnosis before we reach the correct diagnosis of Rett.

I loved hearing about how funny and fun Avery is and I loved hearing about what inspires Jodi to do more for Avery despite Rett Syndrome.

Links to the topics we discussed:  

Jo Pickard, living with Rett Syndrome and so so awesome from Canada

Molly Paris, living with Rett Syndrome and a valedictorian from Florida

Other great resources for education and Rett Syndrome
Rett University –


Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families.



Thanks so much for listening,


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