This is Part 2 of my talk with Caroline. 

I know it took alot of courage to say what Caroline has said – but we know that there are other families out there going through the same challenges and the advice and encouragement from Caroline is so powerful. 

Thank you again to Caroline for sharing your story. 

Links to the topics we discussed in this episode: 

Elizabeth Halford – Grace for Rett

Tracey Hoyng – (my blog!) (Our Rett Syndrome diagnosis etc) (Archive)

Resources for Siblings
Siblings Australia
Sibling Support Project
Growing up with a special needs sibling
20+ Books about Siblings with Disabilities
Self care ideas for parents
Exercising to relax
Realistic Self-Care Tips for Special Needs Parents –
Stress Management for Parents of Special Needs Children –

Justine Clark

Dr Helen Leonard

AGOSCI Conference – a group within Australia that explores resources for Complex Communication Needs



Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families. 




Thanks so much for listening, 



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